Privacy Notice

Privacy Notice for Future Genetics Limited Website Users

Version 1. Dated 13 Dec. 18

  1. About us

We are Future Genetics Limited; a precision medicine research company, based in the UK, whose focus is simply the patient. We are focused on the discovery and development of disease biomarkers in areas of unmet clinical need.

  1. Introduction and purpose of this Privacy Notice

This Privacy Notice details key information that it is critical for you to know when you provide your personal information to Future Genetics Limited.

This document explains what to expect when Future Genetics Limited is provided information from you, when you visit our website. This privacy policy does not apply to participants involved in our clinical trials.

At Future Genetics, we control your data in relation to your personal data and this Privacy Notice describes how we process it. Processing your data can mean collecting, organising, storing and destroying it. We will always make sure your personal data is protected and we will ensure that your data will be processed:

  • Justly and respectively;
  • Only for the relevant and agreed purpose of which it is to be used
  • Accurately – we will ensure that all your personal data is correct and up to date.
  • So that it is kept no longer than is permitted or necessary;
  • So that your personal data is protected securely to prevent loss, unauthorised destruction, use or disclosure.
  • In accordance with the General Data Protection Regulation (GDPR) 2018 and the Data Protection Act 2018.


  1. Our right to change our Privacy Notice

We may make changes to our Privacy Notice. You will be notified of our updated version when we post our changed Privacy Notice on the Future Genetics Limited website. After which it will then apply and supersede this version. We will always put the date and version of our Privacy Notice at the top, so that you can easily find this information. We will also keep previous versions of our Privacy Notice, in the case that you want to refer to them.




  1. What is personal data?

Personal data is any information about a living individual that can be used to identify the individual, such as name, address, date of birth, email address, username, NHS number and NHS GP Surgery.

  1. What information we collect

When you register to access materials related to our clinical trials we collect the following personal data when you provide it to a Future Genetics Researcher, such as:

  • Name and title
  • Username
  • Address
  • Email address
  • NHS GP Surgery
  • NHS number
  • Date of birth


  1. Your personal data and how we process it

At Future Genetics, we will only use your personal data lawfully and when you have given us your informed consent to the processing of it. Your personal data will most commonly be used;

  • To send you regular articles written by Future Genetics Research Scientists (if you have signed up)
  • To allow you to register to participate in our Clinical Trials
  • Verify your identity and registration details by contacting third parties.
  • To allow access to Future Genetics Clinical Trial private and confidential information.

You may withdraw your registration at any time by contacting us at Upon your request and confirmation, your application to register will be deleted.

Future Genetics will never sell of share your personal information with third parties who may use it for their own purposes. However, if you are registered to our clinical trials, your identity may be used when researchers contact organisations to request data.

  1. How we protect your personal data

Your security and privacy are very important to us.  Only authorised researchers will have access to your personal data. All identifiable data held by the authorised researchers will be treated as private and confidential. All data for research analysis will be de-identified. The purpose of de-identifying data is to protect the identity of the participants.

  1. How long we keep your personal data

We will only retain your personal data for as long as necessary or permitted to fulfil the purposes we collected it for.


  1. Your rights and your personal data

Under certain circumstances, by law you have rights with respect of your personal data.  These include the below rights:

  1. Request access to your personal data so you can check that we hold and that we have processed it in a lawful way. This is called a ”data subject access request”.
  2. Request that we update or amend your personal data if required.
  3. Request that we delete and erase your personal data, for example when/if you decide to terminate your registration with us.
  4. In the event that there is a dispute around accuracy of data, you can request that data processing is restricted until the dispute is resolved.
  5. A request to transfer your data to a third party if this is set out in a contract or is based on the consent provided by you, and where the processing is automated.


Should you want to submit a request to obtain, correct, restrict processing of, or erase personal data, let us know by emailing or writing to Future Genetics (address listed below).

For more information on your rights relating to personal data please visit the Information Commissioner’s website.



In the unfortunate event that you feel we have not handled your personal data in a lawful manner, please contact our Data Protection Officer at If you would like to make a complaint, then in the first instance please approach Future Genetics. The Senior Manager will take responsibility to resolve the matter. However if you feel you are unhappy with the resolution and feel the issue has not been resolved, your complaint will be escalated to the CEO of Future Genetics. You also have the right to contact the Information Commissioner’s Office, which is the UK’s independent body set up to uphold information rights. (address listed below). 

You can contact the Future Genetics DPO at :

Future Genetics Limited

Birmingham Research Park

97 Vincent Drive


B15 2SQ

Tel: 0121 667 3007

You can contact the Information Commissioner’s Office at:


Information Commissioner’s Office

Wycliffe House

Water Lane




Tel: 0303 123 1113


You can also contact us about your complaint here


Contact details and useful information


If you have any queries about this Privacy Notice or how we handle/process your personal data then please feel free to contact our Data Protection Officer at